Well, we were so excited being able to come home from Houston, but a little naive regarding the recovery. Healing from the surgery has been harder than chemo and radiation combined.
Cindy struggled with extreme pain for the first two weeks, and was limited to pain management. The medicine she used before and after surgery only exacerbated the recovery and digestion of food. Cindy lost a lot of weight with a very limited diet. After several trips to the ER, Tx Oncology, and GI offices, we were off again to Houston to bring out the big guns at MD Anderson.
Well it turned out that Cindy was stuck in a vicious cycle. She would crash, and we would take her into the ER or Tx Oncology for extreme lethargy and lack of energy. There, she would receive an IV to stabilize her hydration and electrolytes, then go home to resume the recovery. She was on a very limited diet, unable to eat fiber, fat, grains, nuts, or vegetables.
Once she was seen at MDA, they recognized that she was hypoglycemic, causing her blood sugar to skyrocket after eating the recommended diet. This would cause her body to dump fluids and electrolytes, resulting in the extreme lethargy.
We have now added low carbohydrates to the list and changed her diet. She is back on her feet and feeling much stronger. She is very confident that a full recovery is just a few months away! It's amazing how bad you can feel when your blood sugar spikes over 200.
These symptoms should only be temporary, the doctors said that as she heals, her body will resume normal functions seen in over 90% of cases.
Some have asked, "How many stitches did it take to put her back together?" Almost 100! The doctors said that she is in the top 10% of patients who recover this well at this stage. GO CINDY!
As always, thanks to everyone for your thoughts and prayers.
-Paul
Friday, December 12, 2014
Wednesday, November 19, 2014
Austin bound!
Cindy followed up with her surgeon, Dr. Fleming, and he was very pleased with how the well the healing process is going. They have changed her pain meds, and they seem to be helping as well. Cindy's approved diet is expanding, which is exciting! But most importantly... she gets to come home tomorrow!!! Cindy will begin updating the care calendar when she gets back home, and is beyond excited to be heading back!
Saturday, November 15, 2014
Farewell for now MD Anderson!
Cindy was discharged yesterday around lunchtime from MD Anderson!!! They want her to stay close for the next couple of weeks for monitoring.
Stacy, Alex, and Paisley went down to see her this weekend and help lift spirits all around. Cindy was also blessed with Tom, Becky, and Lisa being able to go down and visit during this transition, and they are a great source of strength and love.
Cindy is still on a liquid diet but getting stronger by the day.
The strong prayers and thoughts are being felt all around, and the family is so grateful for all forms of support.
Please continue sending your love and prayers, the fight is still long and tough, but is made easier through the support of family and friends.
Gratefulness and Love,
Cindy and the Family
Stacy, Alex, and Paisley went down to see her this weekend and help lift spirits all around. Cindy was also blessed with Tom, Becky, and Lisa being able to go down and visit during this transition, and they are a great source of strength and love.
Cindy is still on a liquid diet but getting stronger by the day.
The strong prayers and thoughts are being felt all around, and the family is so grateful for all forms of support.
Please continue sending your love and prayers, the fight is still long and tough, but is made easier through the support of family and friends.
Gratefulness and Love,
Cindy and the Family
Wednesday, November 12, 2014
Recovery Day 8
Cindy had a very good day!
She took her first hot shower and washed her hair. She took many walks around MD Anderson and went up to the observation deck on the top floor. Her diet has been expanded to soup, oatmeal, grits, and pudding. Yum! Food is digesting well and increasing her strength.
Cindy is transitioning from IV meds to pill form in preparation to leave the hospital. Tomorrow she will lose her side stomach port.
If all stays stable she will leave the hospital Friday! Thank you Darla for being here this week!
She took her first hot shower and washed her hair. She took many walks around MD Anderson and went up to the observation deck on the top floor. Her diet has been expanded to soup, oatmeal, grits, and pudding. Yum! Food is digesting well and increasing her strength.
Cindy is transitioning from IV meds to pill form in preparation to leave the hospital. Tomorrow she will lose her side stomach port.
If all stays stable she will leave the hospital Friday! Thank you Darla for being here this week!
Tuesday, November 11, 2014
Pathology clear!
Cindy's pathology report came back today and showed all clean and clear margins and no lymph involvement! What fantastic news to hear! Still hitting rough patches in the recovery as far as her digestive comfort is concerned, but still healing. Her epidural is coming out today, and they will begin to transition to oral medications. A hot shower is in her near future, and she is dining on Jello and juice today! But the huge news being that she is cancer free!!!
Cindy is so thankful for the amazing love and support throughout this process, so keep it coming! The recovery is taking big steps!
Cindy is so thankful for the amazing love and support throughout this process, so keep it coming! The recovery is taking big steps!
Monday, November 10, 2014
Recovery Day 6
Cindy got her stomach pump taken out today! HOORAY! The tube through her nose was very uncomfortable and she couldn't wait for that to go. She also got to visit the beauty parlor, put make-up on and get a warm sponge bath. She is feeling like a brand new woman!
She then got to visit the outdoor park on Floor 2 of MD Anderson to soak up some sunshine. She was in heaven! Took a nap in the sun and got to enjoy the panoramic view of Houston. She is meeting all her milestones like a champ.
She is likely to discharge from the hospital to Mark and Jeanne Marie's home in Houston on Friday! That will be the best time for flowers or other gift deliveries.
Cindy's brother, Tom and wife Becky from New Mexico, Friends Lisa and Mike, Stacy, Brandon, and Alex will be there this weekend as she transitions out of the hospital. Paisley will also get to join us! Cindy has been waiting and waiting to get some puppy kisses!
She then got to visit the outdoor park on Floor 2 of MD Anderson to soak up some sunshine. She was in heaven! Took a nap in the sun and got to enjoy the panoramic view of Houston. She is meeting all her milestones like a champ.
She is likely to discharge from the hospital to Mark and Jeanne Marie's home in Houston on Friday! That will be the best time for flowers or other gift deliveries.
Cindy's brother, Tom and wife Becky from New Mexico, Friends Lisa and Mike, Stacy, Brandon, and Alex will be there this weekend as she transitions out of the hospital. Paisley will also get to join us! Cindy has been waiting and waiting to get some puppy kisses!
Sunday, November 9, 2014
Recovery Day 5
Great day today! Pain is getting much more manageable. Walked the floor 6 times and gaining strength by the day. Had my first bowel movement and peed not using the catheter!!! This is a major success on the road to going home. Had my first blood infusion and feel good. Having my daily popsicle which is such a treat!
Had lots of help over the weekend from Paul, Mark, Jeanne Marie, Caroline, Alex, Kelli, Karen and Jane. Thank you all for your help! I also had a surprise guest helper, Sara that showed up tonight from Austin to sit with me for the night shift. WOW!
I look forward to seeing my sister in law, Darla, tomorrow who is coming in for the week from Florida!
Many prayers answered and I feel so blessed!
Had lots of help over the weekend from Paul, Mark, Jeanne Marie, Caroline, Alex, Kelli, Karen and Jane. Thank you all for your help! I also had a surprise guest helper, Sara that showed up tonight from Austin to sit with me for the night shift. WOW!
I look forward to seeing my sister in law, Darla, tomorrow who is coming in for the week from Florida!
Many prayers answered and I feel so blessed!
Friday, November 7, 2014
Recovery update: Day 3
Day three started out with more struggles with pain management, but Cindy's great nursing staff is ontop of all of it, getting her comfortable as quickly as possible. The family and friends side of team Cindy is making rotations for the weekend as Alex, Kelli, Karen, Jane and Caroline come into town. Cindy is setting and exceeding her goals for laps walked around the nurses station. She was also able to have her first popcicle today which she has very much been looking forward to!
Cindy is able to check her Facebook from time to time, and is so grateful for the amazing amount of love and support flowing in from all directions! Keep it up!
Cindy is able to check her Facebook from time to time, and is so grateful for the amazing amount of love and support flowing in from all directions! Keep it up!
Wednesday, November 5, 2014
Update on Cindy!
Cindy is looking stronger by the hour! Pain management was a slight concern through the night but has been handled quickly and efficiently. She's in great spirits, and feasting on gourmet ice chips. The room she is in now is much too small to handle flower arrangements, so if you'd like to send your love, cards are the best option for now. Cindy feels so blessed to have such a caring group of friends and family surrounding her with love and prayers.
Address for cards only please!
Cindy Dicks
1515 Holcombe Blvd. Rm#P629
Houston, TX. 77030
Flowers welcome at the following address starting on the 11th of Nov.
Mark and Jeanne Marie Dicks
3414 El Dorado Blvd
Missouri City, TX 77459
Tuesday, November 4, 2014
Surgery is over!
Cindy's surgery went as smooth as anyone could have hoped! Dr. Fleming met with all of us just a few minutes ago and was nothing but positive about the procedure and the end result. All cancer removed, no surprises, and no signs of spreading. Cindy is awake but groggy, and they will be moving her over to a recovery room soon. Thank you all so much for the continued prayers. God is good.
Love to all,
Paul and the family
Love to all,
Paul and the family
Sunday, November 2, 2014
MD Anderson- Surgery Prep
On Oct. 28 ad 29 we went to MD Anderson in Houston. On Tuesday, I had blood work drawn and a CT scan of my pancreas and abdomen. My blood work came back with a higher white blood cell count, tumor marker at normal, all others had improved as well. I gained about 5 pounds which also pleased my team.
On Wednesday, we went over these results with Dr. Fleming, my GI surgeon as well as talking with the nutritionist. I will be on a clear liquid diet for the first few days and then graduate to full liquid foods such as mashed potatoes, oatmeal, cream of wheat, and smoothies.
The surgery will take 6-8 hours depending on whether the plastic surgeons need to replace any veins. It takes 3 hours just to get to the pancreas! I will have my stint, gallbladder, and part of my intestines removed.My pain will be managed with an epidural the first 3-4 days, and then a pump. Once I leave the hospital I will manage it with pills. I will be up walking as early as Wednesday. I'll have pumps around my lower legs for clotting and tubes on my sides for drainage until the plumbing is working on its own again. :)
Organs do not like to be messed with and so they stop working and have to be gently reminded for a few days on what to do.
Tomorrow, Monday the 2nd, we are heading to Houston. I will be on a clear liquid diet and have to do a cleanse in the afternoon as a part of the prep.
This weekend was wonderful. We had friends over Saturday for fire pit and friendship while watching the Horns beat Tech. Sunday we had a lovely brunch out at the lake with friends. Trying to have some yummy meals before I can't.
Paul will begin blogging again several times a week and possibly daily.
Hugs to all,
Cindy
On Wednesday, we went over these results with Dr. Fleming, my GI surgeon as well as talking with the nutritionist. I will be on a clear liquid diet for the first few days and then graduate to full liquid foods such as mashed potatoes, oatmeal, cream of wheat, and smoothies.
The surgery will take 6-8 hours depending on whether the plastic surgeons need to replace any veins. It takes 3 hours just to get to the pancreas! I will have my stint, gallbladder, and part of my intestines removed.My pain will be managed with an epidural the first 3-4 days, and then a pump. Once I leave the hospital I will manage it with pills. I will be up walking as early as Wednesday. I'll have pumps around my lower legs for clotting and tubes on my sides for drainage until the plumbing is working on its own again. :)
Organs do not like to be messed with and so they stop working and have to be gently reminded for a few days on what to do.
Tomorrow, Monday the 2nd, we are heading to Houston. I will be on a clear liquid diet and have to do a cleanse in the afternoon as a part of the prep.
This weekend was wonderful. We had friends over Saturday for fire pit and friendship while watching the Horns beat Tech. Sunday we had a lovely brunch out at the lake with friends. Trying to have some yummy meals before I can't.
Paul will begin blogging again several times a week and possibly daily.
Hugs to all,
Cindy
Monday, October 6, 2014
Two week follow up
Today I saw, Katie, my PA for my oncologist. The last time I saw her I was pretty pitiful so it was great to see her with good news. I have put on about 4 pounds and my blood work came back with better numbers including my white blood cell count is up. She said to continue with the enzymes and over the counter meds that help with digestion.
This weekend my 88 year old sweet mama is coming from Miami along with my brother Bob and his wife Nancy. My little bro, Tom and his wife Becky from Albuquerque will also be here. Looking forward to some family fun and lots of huggin on my mama.
The following weekend my cousins are coming from the North East for a quick visit as well. We will enjoy eating lots of good food that will help fattin me up. LOL
Hugs,
Cindy
This weekend my 88 year old sweet mama is coming from Miami along with my brother Bob and his wife Nancy. My little bro, Tom and his wife Becky from Albuquerque will also be here. Looking forward to some family fun and lots of huggin on my mama.
The following weekend my cousins are coming from the North East for a quick visit as well. We will enjoy eating lots of good food that will help fattin me up. LOL
Hugs,
Cindy
Monday, September 29, 2014
Feeling Great
As some of you know, my weekend in Rockport was not what I expected. I wasn't feeling well at all, but loved being with my besties. We still got to enjoy a walk on the beach, a dinner out, and we watched the oldie but goody, YA-YAs movie.
That Monday, I began to feel better and by Tuesday I felt amazing. I went to see the P.A, Katie and told her of my rough weekend with nausea and pain. She said it was absolutely normal because the radiation and chemo take a couple of weeks to completely go away. She prescribed a meal enhancer and boy has that helped. I''m also taking a - and enzymes to help with digestion and absorption. Now that I feel normal and hungry I have no doubt I can gain some weight and get strong for the surgery on Nov. 4.
On Saturday, our family, including my sister-in-law, Darla, who was here from Florida, participated in the Walk to End Alzheimers that Stacy was sponsoring. It was a beautiful cool morning. The walk was a few hundred people so not to crazy and was held in the beautiful San Gabrielle Park in Georgetown. I am planning to walk each morning and evening a few times a week to increase my heart rate.
I have not asked for any meals on the care calendar for now. We will need meals again in December during recovery.
My brother, Bob and his wife, Nancy are bringing my mom to see me on Oct. 10. I am not supposed to travel by plane due to germs. It will be a quick visit but I can't wait to see her. As most of you know she is 88 and has dementia so it's not easy for her to travel. Thank you Bob and Nancy for helping get her here. My brother, Tom and his wife will be here a well. :)
Hugs,
Cindy
That Monday, I began to feel better and by Tuesday I felt amazing. I went to see the P.A, Katie and told her of my rough weekend with nausea and pain. She said it was absolutely normal because the radiation and chemo take a couple of weeks to completely go away. She prescribed a meal enhancer and boy has that helped. I''m also taking a - and enzymes to help with digestion and absorption. Now that I feel normal and hungry I have no doubt I can gain some weight and get strong for the surgery on Nov. 4.
On Saturday, our family, including my sister-in-law, Darla, who was here from Florida, participated in the Walk to End Alzheimers that Stacy was sponsoring. It was a beautiful cool morning. The walk was a few hundred people so not to crazy and was held in the beautiful San Gabrielle Park in Georgetown. I am planning to walk each morning and evening a few times a week to increase my heart rate.
I have not asked for any meals on the care calendar for now. We will need meals again in December during recovery.
My brother, Bob and his wife, Nancy are bringing my mom to see me on Oct. 10. I am not supposed to travel by plane due to germs. It will be a quick visit but I can't wait to see her. As most of you know she is 88 and has dementia so it's not easy for her to travel. Thank you Bob and Nancy for helping get her here. My brother, Tom and his wife will be here a well. :)
Hugs,
Cindy
Wednesday, September 17, 2014
MD Anderson
It was a rainy trip but we got great info and are still on track for surgery on Nov. 4.
We arrived at MD this morning for routine blood work. Then we met with Jason, a PA for Dr. Fleming, my GI surgeon. He went over most of the information.
Jason went said my blood work looks good, but now that some of the side effects from the radiation are more under control, he wants me to try the enzymes again to help my body absorb more proteins.
After surgery, I will remain in the hospital for 10 days, then stay with family in Houston another week to 10 days. Hopefully home after Thanksgiving. The first week they are watching for infection, blood clots and making sure organs like the stomach begin functioning again. Possible temporary small feeding tube may be used if I cannot drink liquids. Dr. Fleming doesn't think that will be necessary. Foods will be added slowly and I will have a nutritionist to help with the recovery diet. About 8 week after surgery, I will have 1 chemo treatment every 3 weeks for 6 months to cover all the bases and make sure the sucker is ALL gone.
Thank you again for your prayers and support. We will let you know about visitations after surgery as it gets closer.
Hugs,
Cindy
We arrived at MD this morning for routine blood work. Then we met with Jason, a PA for Dr. Fleming, my GI surgeon. He went over most of the information.
Jason went said my blood work looks good, but now that some of the side effects from the radiation are more under control, he wants me to try the enzymes again to help my body absorb more proteins.
After surgery, I will remain in the hospital for 10 days, then stay with family in Houston another week to 10 days. Hopefully home after Thanksgiving. The first week they are watching for infection, blood clots and making sure organs like the stomach begin functioning again. Possible temporary small feeding tube may be used if I cannot drink liquids. Dr. Fleming doesn't think that will be necessary. Foods will be added slowly and I will have a nutritionist to help with the recovery diet. About 8 week after surgery, I will have 1 chemo treatment every 3 weeks for 6 months to cover all the bases and make sure the sucker is ALL gone.
Thank you again for your prayers and support. We will let you know about visitations after surgery as it gets closer.
Hugs,
Cindy
Tuesday, September 9, 2014
Home Stretch
Last week was a good one since I ended up only having two days of radiation. Monday was a holiday and the machine was down for two days. I have to make those two days up next Monday and Tuesday. I get to say so long for good to McChemi on Friday. :)
I had another CAT scan yesterday because on one of my mini scans they do before each radiation it looked like the stent had moved, but the scan showed it to be where it needs to be so no need for another procedure that would mess things up.
This week continues to be the same with fatigue and stomachache rather than nausea so eating is not my favorite part of the day.
Looking forward to celebrating the end of this part of my journey with 5 of my besties as we travel to the beach in Rockport,TX. where a friend has a house. The beach, movies, games, food and lots of laughter will best medicine yet. Thank you, Jana, for the use of your home.
October will be time for healing, getting stronger and putting on some extra pounds. :)
Hugs,
Cindy
Sunday, August 31, 2014
What a difference a day makes
Ok, so I was fooled. Radiation is not a piece of cake. It's been kicking by butt lately as it accumulates.
I was admitted to the hospital on Tuesday, last week, for dehydration and for a culture to rule out infection.
My results were normal and numbers were good, so just a precautionary visit. I did have to stay over night. Felt pretty yucky the rest of the week, but come Saturday, I woke up feeling normal ready to eat anything. So...like I said...WHAT A DIFFERENCE A DAY MAKES. I get Monday off and will have to make up the day I missed in the hospital. I should be through by Sept. 15. Only two more weeks. :)
My brother Jim and his wife Chris are here now. We are relaxing by the pool and enjoyed watching some college football even if we are for two different teams. It was very BURN ORANGE around here Saturday. Sorry Jim. haha
MD Anderson has me scheduled for a visit with Dr. Fleming on Sept. 17. Then return on Oct. 28-29 for labs and a CT. The Whipple surgery is now scheduled for Nov. 4.
Hugs all around,
Cindy
I was admitted to the hospital on Tuesday, last week, for dehydration and for a culture to rule out infection.
My results were normal and numbers were good, so just a precautionary visit. I did have to stay over night. Felt pretty yucky the rest of the week, but come Saturday, I woke up feeling normal ready to eat anything. So...like I said...WHAT A DIFFERENCE A DAY MAKES. I get Monday off and will have to make up the day I missed in the hospital. I should be through by Sept. 15. Only two more weeks. :)
My brother Jim and his wife Chris are here now. We are relaxing by the pool and enjoyed watching some college football even if we are for two different teams. It was very BURN ORANGE around here Saturday. Sorry Jim. haha
MD Anderson has me scheduled for a visit with Dr. Fleming on Sept. 17. Then return on Oct. 28-29 for labs and a CT. The Whipple surgery is now scheduled for Nov. 4.
Hugs all around,
Cindy
Friday, August 15, 2014
Moving right along
I'm not blogging as much right now since most days are the same. Radiation has been a little harder than I thought with nausea and fatigue, but meds are helping and I plan my days accordingly.
I'm looking forward to seeing my two bothers Tom and Jim. Tom is coming in town from Albuquerque on the 26. It is a work trip for him so no other family joining him this time. Jim and his wife, Chris, are coming on the 30th from Miami. They will be here for the weekend. It's probably hotter here than it is there.
Paul is getting busier which is good now that my days are more predictable and I can drive myself to appointments, but he still likes to go when he can. I know I said it before, but I could not ask for a sweeter, more attentive care giver. He has always been an attentive and giving husband and we have always been very close, but this journey has made us even closer. I truly married my soul mate. Thank you again, Paul, for everything you have done for me and I know will continue to do until we beat this thing.
This weekend we have an 80th birthday party to attend and a pool party with some neighbors. Speaking of birthdays, my mom turns 88 on Saturday! It makes me very sad every time I think how long it's going to be before I am able to travel to see her. She doesn't know about my illness since she wouldn't remember any way.
I was able to sell quite a few things and lots of books from my classroom. Made myself some shopping money. :) A few first year teachers were able to get things free. The rest was donated to a place called the Caring Place in Georgetown.
Finally, a big shout out to the chefs this month. I enjoyed our visits too!
Hugs and have a great weekend,
Cindy
I'm looking forward to seeing my two bothers Tom and Jim. Tom is coming in town from Albuquerque on the 26. It is a work trip for him so no other family joining him this time. Jim and his wife, Chris, are coming on the 30th from Miami. They will be here for the weekend. It's probably hotter here than it is there.
Paul is getting busier which is good now that my days are more predictable and I can drive myself to appointments, but he still likes to go when he can. I know I said it before, but I could not ask for a sweeter, more attentive care giver. He has always been an attentive and giving husband and we have always been very close, but this journey has made us even closer. I truly married my soul mate. Thank you again, Paul, for everything you have done for me and I know will continue to do until we beat this thing.
This weekend we have an 80th birthday party to attend and a pool party with some neighbors. Speaking of birthdays, my mom turns 88 on Saturday! It makes me very sad every time I think how long it's going to be before I am able to travel to see her. She doesn't know about my illness since she wouldn't remember any way.
I was able to sell quite a few things and lots of books from my classroom. Made myself some shopping money. :) A few first year teachers were able to get things free. The rest was donated to a place called the Caring Place in Georgetown.
Finally, a big shout out to the chefs this month. I enjoyed our visits too!
Hugs and have a great weekend,
Cindy
Thursday, August 7, 2014
Radiation...a piece of cake
Just a quick update on radiation. Side effects have been minimal. Definitely feel the fatigue and only a little nauseous now and then. Sleeping well. I like my 11:45 time for radiation because I can have breakfast about 8-8:30 then either go back to bed or start the day. The no food or water for the next three hours is a little tough. Especially the no water. Everyone at the radiation office is awesome. I'm in and out in about 20-30 minutes and the office is in the same Texas Oncology building just down the street. I don't have to change into a gown which is nice. Just stay in my clothes.
Looking forward to turning in the pump tomorrow after treatment. WHOOHOO! Free at last, free at last. haha
Spent a few days this week in my classroom clearing out my things and organizing for a sale next week. I have to say it's been awesome seeing the back to school commercials and isles in the stores and not going into a panic. I plan to volunteer, but that won't be until Spring because of germs. Best wishes to all my teacher friends out their about to start their new year. :)
Hugs all around,
Cindy
Looking forward to turning in the pump tomorrow after treatment. WHOOHOO! Free at last, free at last. haha
Spent a few days this week in my classroom clearing out my things and organizing for a sale next week. I have to say it's been awesome seeing the back to school commercials and isles in the stores and not going into a panic. I plan to volunteer, but that won't be until Spring because of germs. Best wishes to all my teacher friends out their about to start their new year. :)
Hugs all around,
Cindy
Tuesday, August 5, 2014
And so it begins
My radiation was moved up to today so I could get it along with the pump. The chemo is 1/5 of the dose I had before and dispensed at a much slower pace so Dr. H. said the side effects from it will be minimal. The chemo acts as the first punch, wounding the tumor and the radiation acts as the second, going in for the kill.
This is why they have to be given at the same time. Radiation side effects are much like the chemo though and I already feel a bit nauseous. From now on I get the pump on Mondays before radiation and turn it in on Fridays after radiation.
The radiation itself was really cool. I felt like I was in a spaceship. I lie on a table and a machine with a large circle shape above me that moves around and stops every now and then and buzzes. There are also some other large extensions moving around at the same time. The circular dome is the radiation but you don't see any beams or feel anything. I had 6 beams from different directions.
Dr. Hellerstendt and Dr.Fleming, from MD had a long chat. They both that if I get any infection, fever or pain beyond control, we will do antibiotics again but alternate, week on and week off. Everyone is trying NOT to do the draining tube.
As of now I have felt great . Fingers crossed and prayers for no tube.
If we follow the 28 day schedule without interruption, my last day will be Sept. 11. MD Anderson has already scheduled my next visit after radiation for Sept. 16 and 17 to have blood work and a CT, then meet with Dr. Fleming, my surgeon, to schedule the Whipple for early November.
Hugs,
Cindy
This is why they have to be given at the same time. Radiation side effects are much like the chemo though and I already feel a bit nauseous. From now on I get the pump on Mondays before radiation and turn it in on Fridays after radiation.
The radiation itself was really cool. I felt like I was in a spaceship. I lie on a table and a machine with a large circle shape above me that moves around and stops every now and then and buzzes. There are also some other large extensions moving around at the same time. The circular dome is the radiation but you don't see any beams or feel anything. I had 6 beams from different directions.
Dr. Hellerstendt and Dr.Fleming, from MD had a long chat. They both that if I get any infection, fever or pain beyond control, we will do antibiotics again but alternate, week on and week off. Everyone is trying NOT to do the draining tube.
As of now I have felt great . Fingers crossed and prayers for no tube.
If we follow the 28 day schedule without interruption, my last day will be Sept. 11. MD Anderson has already scheduled my next visit after radiation for Sept. 16 and 17 to have blood work and a CT, then meet with Dr. Fleming, my surgeon, to schedule the Whipple for early November.
Hugs,
Cindy
Friday, August 1, 2014
Meeting with Dr. Cohen, Radiation Oncologist
Today we met with Dr. Cohen to discuss our radiology plan. I really like her a lot. She is not only very professional but easy to talk to.
I had a 4D CT to help define what position I would be in every time taking into account breathing and moving of organs. Before each treatment, they will do a mini scan to be sure things are in place.
The radiation will cover not only the tumor but nearby outside areas as well including lymph-nodes. I have 3 red X's, one on each side and one in the middle of my abdomen with clear water proof tape placed over them as position markers. So attractive, LOL.
I cannot eat 3 hours before each treatment. As of now my appointment time each day will be 11:45 except for my first which is tentatively scheduled for Wednesday, August 6 at 1:45 after meeting with Dr. Hellerstendt to confirm the plan. As for getting to and from treatment, I think I can drive myself but will ask Dr. H. on Wednesday. I will post on the care calendar or get in touch with some of my local friends who might be available if any rides are needed. I get the chemo pump on Mondays and turn it in on Fridays. No side effects expected from radiation but fatigue but some may occur from chemo after a couple weeks, but nothing I haven't already experienced.
Today I felt the best I have in a long time, but I'm ready to take on whatever is needed to continue the successful results we have had so far.
Hugs all around,
Cindy
I had a 4D CT to help define what position I would be in every time taking into account breathing and moving of organs. Before each treatment, they will do a mini scan to be sure things are in place.
The radiation will cover not only the tumor but nearby outside areas as well including lymph-nodes. I have 3 red X's, one on each side and one in the middle of my abdomen with clear water proof tape placed over them as position markers. So attractive, LOL.
I cannot eat 3 hours before each treatment. As of now my appointment time each day will be 11:45 except for my first which is tentatively scheduled for Wednesday, August 6 at 1:45 after meeting with Dr. Hellerstendt to confirm the plan. As for getting to and from treatment, I think I can drive myself but will ask Dr. H. on Wednesday. I will post on the care calendar or get in touch with some of my local friends who might be available if any rides are needed. I get the chemo pump on Mondays and turn it in on Fridays. No side effects expected from radiation but fatigue but some may occur from chemo after a couple weeks, but nothing I haven't already experienced.
Today I felt the best I have in a long time, but I'm ready to take on whatever is needed to continue the successful results we have had so far.
Hugs all around,
Cindy
Wednesday, July 30, 2014
MD Anderson Update
Big Week! Arrived on Sunday in Houston and stayed with Mark and Jeanne Marie. Monday we worked with the MD Anderson team all day running tests and scans. We met Carol (Dr, Flemings P.A) who walked us through all the test and scans like a true pro.
We arrived back and MD Anderson today to meet with Dr. Fleming and his team to discuss tests and scan results in detail as well as develop of plan of action. The good news is nothing has changed. The tumor is the same size and there is no sign of the cancer spreading. Dr. Fleming paid the Texas Oncology a huge compliment with Cindy's care and plan moving forward.
Dr. Fleming recommended the multi- directional radiation in conjunction with Chemo for 28 days followed by the Whipple surgery 6-8 weeks after radiation. The time line has shifted slightly. We now expect the surgery the first week in November.
We plan to continue radiation therapy with Texas Oncology and then transfer to MD Anderson for the actual surgery. Mark and Jeanne are preparing a down stairs suite for me at the house (So Sweet). I will be in the hospital for two weeks post surgery and need to stay in the Houston area another two weeks. We will
have Thanksgiving in Houston and hopefully family can travel. It will take 6-8 months to return to normal and as Dr. Fle ming said I will be able to jump out of planes like some of his other patients. (LOL).
We plan to do the Surgery in Houston with Dr. Fleming due to the amount of surgeries he and his staff have conducted. Dr McKenzie is fantastic and will remain our back up. This is a huge surgery and is complicated by the fact they may need to graph a vein that the tumor is resting against. MD Anderson has performed more of these surgeries than any other facility and Dr. Fleming is the lead surgeon for the Whipple with the best results. He has conducted over 45 of the Whipple plus surgery with a 100% success rate.
The MDA team confirmed the spot on the liver was a hemangioma and not metastases of the cancer. The Gallbladder is still acting up and will be removed during the surgery. We are hoping to manage the pain with out a drain tube surgery but only time will tell. We were dismissed early with a great future prognoses and the renewed confidence in our Austin team. Dr. Fleming several times what a great job they have done in my current treatment and plan for a full recovery by early next year.
My main focus now is to get as healthy as possible and train for the Whipple surgery. It is considered a marathon surgery and the healthier and stronger I am the better the results. We have added an enzyme to help me retain nutrients in the food I consume. Now more than ever I just need to work out, eat right and stay focused on training for the surgery.
Thank you all for your prayers. Again, HE hears you!
Cindy
We arrived back and MD Anderson today to meet with Dr. Fleming and his team to discuss tests and scan results in detail as well as develop of plan of action. The good news is nothing has changed. The tumor is the same size and there is no sign of the cancer spreading. Dr. Fleming paid the Texas Oncology a huge compliment with Cindy's care and plan moving forward.
Dr. Fleming recommended the multi- directional radiation in conjunction with Chemo for 28 days followed by the Whipple surgery 6-8 weeks after radiation. The time line has shifted slightly. We now expect the surgery the first week in November.
We plan to continue radiation therapy with Texas Oncology and then transfer to MD Anderson for the actual surgery. Mark and Jeanne are preparing a down stairs suite for me at the house (So Sweet). I will be in the hospital for two weeks post surgery and need to stay in the Houston area another two weeks. We will
have Thanksgiving in Houston and hopefully family can travel. It will take 6-8 months to return to normal and as Dr. Fle ming said I will be able to jump out of planes like some of his other patients. (LOL).
We plan to do the Surgery in Houston with Dr. Fleming due to the amount of surgeries he and his staff have conducted. Dr McKenzie is fantastic and will remain our back up. This is a huge surgery and is complicated by the fact they may need to graph a vein that the tumor is resting against. MD Anderson has performed more of these surgeries than any other facility and Dr. Fleming is the lead surgeon for the Whipple with the best results. He has conducted over 45 of the Whipple plus surgery with a 100% success rate.
The MDA team confirmed the spot on the liver was a hemangioma and not metastases of the cancer. The Gallbladder is still acting up and will be removed during the surgery. We are hoping to manage the pain with out a drain tube surgery but only time will tell. We were dismissed early with a great future prognoses and the renewed confidence in our Austin team. Dr. Fleming several times what a great job they have done in my current treatment and plan for a full recovery by early next year.
My main focus now is to get as healthy as possible and train for the Whipple surgery. It is considered a marathon surgery and the healthier and stronger I am the better the results. We have added an enzyme to help me retain nutrients in the food I consume. Now more than ever I just need to work out, eat right and stay focused on training for the surgery.
Thank you all for your prayers. Again, HE hears you!
Cindy
Wednesday, July 23, 2014
Last Chemo
Sorry for the delay friends. Paul had his computer out of town and using another computer was not allowing me to log on.
I saw my GI, Dr. Srygley on Monday. He wanted to confirm everything we discussed before he headed out of town. I've been taking the two antibiotics and they took care of the pain and fever right a way. We discussed the possibility of the exterior tube in more detail. The plan is to keep me on these antibiotics for two weeks. Then go off and see if the pain and fever come back. Most likely it will given my pattern so far.
If this happens, he will put in the tube to drain the gallbladder. The tube is the size of a straw with small bag that I can tape down and won't show through most clothing. It takes about 3 months before it needs to empty, but I'll only have it about 6 weeks or so.
Tuesday was my last "chair" chemo treatment. Had an appointment first with Dr. H, my oncologist. She said this next set of scans we get from MD Anderson will be crucial to what's next. There is the .5 mm spot on my liver they want to MRI. It's too small to call it anything right now.
As of now, we will still meet with the radiologist on the 1st and Dr. H that same day to go over MD Anderson's information and decide the right course of action.
My brother, Tom and is lovely family are here now from Albuquerque. I love having all the cousins together We love to reminisce memories from when they lived here in Austin and family vacations. My two nephews, Kevin and Kyle, stayed with me during chemo for about an hour. Such a blessing to have that private time with just them.
Thank you to those who have been delivering meals the past couple of weeks. YUM! You guys can sure cook!
Prayers for good scans next week that will allow us to follow the treatment protocol already planned.
Hugs all around,
Cindy
I saw my GI, Dr. Srygley on Monday. He wanted to confirm everything we discussed before he headed out of town. I've been taking the two antibiotics and they took care of the pain and fever right a way. We discussed the possibility of the exterior tube in more detail. The plan is to keep me on these antibiotics for two weeks. Then go off and see if the pain and fever come back. Most likely it will given my pattern so far.
If this happens, he will put in the tube to drain the gallbladder. The tube is the size of a straw with small bag that I can tape down and won't show through most clothing. It takes about 3 months before it needs to empty, but I'll only have it about 6 weeks or so.
Tuesday was my last "chair" chemo treatment. Had an appointment first with Dr. H, my oncologist. She said this next set of scans we get from MD Anderson will be crucial to what's next. There is the .5 mm spot on my liver they want to MRI. It's too small to call it anything right now.
As of now, we will still meet with the radiologist on the 1st and Dr. H that same day to go over MD Anderson's information and decide the right course of action.
My brother, Tom and is lovely family are here now from Albuquerque. I love having all the cousins together We love to reminisce memories from when they lived here in Austin and family vacations. My two nephews, Kevin and Kyle, stayed with me during chemo for about an hour. Such a blessing to have that private time with just them.
Thank you to those who have been delivering meals the past couple of weeks. YUM! You guys can sure cook!
Prayers for good scans next week that will allow us to follow the treatment protocol already planned.
Hugs all around,
Cindy
Friday, July 18, 2014
Very Long Day
Arrived early this morning at Austin Radiology for the gallbladder scan. A two hour scan turned into a 4 because the gallbladder was not showing up under the dye after 1 hour. The tech said she wanted to see if individual scans every hour would work, but it didn't. So, my gallbladder is inflamed/ has colitis as suspected by Dr. Srygley. So, what does this mean? The metal stint is pushing against the valve causing inflammation. He explained 4 options.
1.- Go in and take out the gallbladder, but this would compromise my treatment.
2- Go in and replace the stint with a plastic one, but again this would need to be done every 3 weeks and compromise my treatment.
3. Continue taking antibiotics for 2 weeks to reduce the inflammation, meanwhile treating pain and fever with meds. I am on 2 different antibiotics- Pliva and Ciprofloxan
He wants to start with option 3 so we can continue the treatment plan. Compromising it is the LAST RESORT. If this does not work, and he said there is a 50% chance it won't, then there is another plan. He will install an external drain /tube that will allow it to do its job until surgery.
Obviously, prayers the antibiotics work! Having another "thing" attached to me daily has me bummed. :(
I'll have the chemo pump every day by then.
I have a follow up appointment with Dr. Srygley on Monday at 1:00. Thank you my friend, Sara, for using up one of your last summer days to give me a ride.
Hugs,
Cindy
1.- Go in and take out the gallbladder, but this would compromise my treatment.
2- Go in and replace the stint with a plastic one, but again this would need to be done every 3 weeks and compromise my treatment.
3. Continue taking antibiotics for 2 weeks to reduce the inflammation, meanwhile treating pain and fever with meds. I am on 2 different antibiotics- Pliva and Ciprofloxan
He wants to start with option 3 so we can continue the treatment plan. Compromising it is the LAST RESORT. If this does not work, and he said there is a 50% chance it won't, then there is another plan. He will install an external drain /tube that will allow it to do its job until surgery.
Obviously, prayers the antibiotics work! Having another "thing" attached to me daily has me bummed. :(
I'll have the chemo pump every day by then.
I have a follow up appointment with Dr. Srygley on Monday at 1:00. Thank you my friend, Sara, for using up one of your last summer days to give me a ride.
Hugs,
Cindy
Thursday, July 17, 2014
Gallbladder CT
Sorry for the delay. We just found out today the gallbladder procedure will be tomorrow, Friday, at 7:45 in the morning at the ARA midtown off 38 1/2 St.
Today was a great day with no fever and very little pain. I helped my team go over resumes, had lunch with old friends from Pond Springs, the school I taught at for 13 years before Fern Bluff. Then I made a quick stop at a favorite store to spend the rest of a gift card. :)
I've come to the conclusion that if this procedure comes back clean, then this low grade fever and minimal to medium pain is just my bodies way of dealing with all the %$*&#@ that's going on inside it. As long as I can maintain enough comfort with meds then lets move on and get the rest of this party started. haha
Not sure when results will be available but I'll post ASAP.
Hugs and enjoy your weekend,
Cindy
Today was a great day with no fever and very little pain. I helped my team go over resumes, had lunch with old friends from Pond Springs, the school I taught at for 13 years before Fern Bluff. Then I made a quick stop at a favorite store to spend the rest of a gift card. :)
I've come to the conclusion that if this procedure comes back clean, then this low grade fever and minimal to medium pain is just my bodies way of dealing with all the %$*&#@ that's going on inside it. As long as I can maintain enough comfort with meds then lets move on and get the rest of this party started. haha
Not sure when results will be available but I'll post ASAP.
Hugs and enjoy your weekend,
Cindy
Wednesday, July 16, 2014
CT results
Dr. Srygley called and said the CT did not show any infection or blockage with the stint. Possible gallbladder colitis causing the fever, so we are waiting to hear back to schedule another CT that will use dye to enter the gallbladder and show if there if any colitis/ inflammation. Once this is determined, then he and my surgeon decide if the gallbladder needs to be removed sooner rather than later. We should hear back today.
GOOD NEWS!
I am retiring! I knew I was close but didn't realize it was this year. The district contacted me and let me know that I qualify. The timing couldn't be better. I was very worried about not starting the school year with my first graders and not being able to return until January. It is with mixed emotions of course. My first thought was not YAY, but tears over the little faces I will not see this Fall. My team and the staff at Fern Bluff Elementary are like family and I am going to miss them very much. I am looking forward to healing and then volunteering when I can at school to keep in touch with everyone. This is not how I saw an end to my 30 year career. Prayers were certainly answered in a big way and I feel very blessed.
Hugs,
Cindy
GOOD NEWS!
I am retiring! I knew I was close but didn't realize it was this year. The district contacted me and let me know that I qualify. The timing couldn't be better. I was very worried about not starting the school year with my first graders and not being able to return until January. It is with mixed emotions of course. My first thought was not YAY, but tears over the little faces I will not see this Fall. My team and the staff at Fern Bluff Elementary are like family and I am going to miss them very much. I am looking forward to healing and then volunteering when I can at school to keep in touch with everyone. This is not how I saw an end to my 30 year career. Prayers were certainly answered in a big way and I feel very blessed.
Hugs,
Cindy
Monday, July 14, 2014
Pain and fever are back
Pain and fever not my best friends came back to visit last night. Fever has stayed low grade so not a big concern but worthy of attention since it continues to reoccur even while on antibiotics. Woke up with little pain, however. :) Today we went to Dr. Hellerstendt's office to look at blood work. They have started me on additional antibiotics and probiotics. Dr. Srygley,my GI, was brought in and agreed to evaluate current stint with a ct scan. CT scan scheduled for 9:50 am tomorrow in Georgetown.
We are a little disappointed, this is supposed to be my good week. We take one step forward and a half a step backward but we are still moving forward. But I also know that the chemo accumulates so not every day/week will look the same. Blood work looked like expected post chemo with borderline anemia. I am very tired today and hoping for a much better day tomorrow.
Hugs,
Cindy
We are a little disappointed, this is supposed to be my good week. We take one step forward and a half a step backward but we are still moving forward. But I also know that the chemo accumulates so not every day/week will look the same. Blood work looked like expected post chemo with borderline anemia. I am very tired today and hoping for a much better day tomorrow.
Hugs,
Cindy
Saturday, July 12, 2014
What a difference a day makes
Having a good week. Started the antibiotics so no more pain. Wednesday and Thursday I felt good. Enjoyed my time visiting with my long time BFF, Jane, from Dallas who I've known since the 4th grade.
We have a good time remembering our time in Florida together playing dolls, swimming non stop, and listening to our favorite heart throbs. Friday was my "BLAH" day. Mostly tired and more nauseous. Woke up today feeling much better. :) Jane left today, but not without leaving behind some comfort foods for the week. Home made peach cobbler and banana pudding. Thank you my special friend.
Not much on the calendar next week but the usual lab check with the physicians assistant. Looking forward to my brother Tom and his family coming for my last chemo treatment . The rest will be the 6 week combo pump/radiation. We meet with the radiologist on August 1.
Several friends have mentioned having a hard time getting on the care calendar. Here is the info again...
www.carecalendar.org log in- 183546C password- 4772
Blessings to all,
Cindy
We have a good time remembering our time in Florida together playing dolls, swimming non stop, and listening to our favorite heart throbs. Friday was my "BLAH" day. Mostly tired and more nauseous. Woke up today feeling much better. :) Jane left today, but not without leaving behind some comfort foods for the week. Home made peach cobbler and banana pudding. Thank you my special friend.
Not much on the calendar next week but the usual lab check with the physicians assistant. Looking forward to my brother Tom and his family coming for my last chemo treatment . The rest will be the 6 week combo pump/radiation. We meet with the radiologist on August 1.
Several friends have mentioned having a hard time getting on the care calendar. Here is the info again...
www.carecalendar.org log in- 183546C password- 4772
Blessings to all,
Cindy
Wednesday, July 9, 2014
Morning after
Good Morning!
Well an uneventful night, Yay ;) My medicine is working well and my cancer fighters with their purple capes worked all night. Hot flashes were annoying most of the night, even had to change my nightgown, but no breakout pain and no fever. I am feeling well this morning but a little tired and my body is moving faster than my brain, Chemo brain. So gotta take it slow.
I ate a wonderful breakfast and am feeling good overall. Paul is driving me to School today to talk to Dr. Wilson about the 2014 school year. I do not trust myself driving under all the medications. Paisley is keeping me company and is the best greeter in the morning. McChemey is pumping my chemo drugs as I type. I return him Thursday at 2:00.
Thanks again to all my friends and family for your support and many gifts. I gained 3 lbs from my last treatments, which is really hard to do under chemo. It is a direct reflection of the many wonderful meals from my dear friends. The care calendar has been a true blessing.
Love, Cindy
PS: Please keep the prayers coming. We have already received so many blessings.
Well an uneventful night, Yay ;) My medicine is working well and my cancer fighters with their purple capes worked all night. Hot flashes were annoying most of the night, even had to change my nightgown, but no breakout pain and no fever. I am feeling well this morning but a little tired and my body is moving faster than my brain, Chemo brain. So gotta take it slow.
I ate a wonderful breakfast and am feeling good overall. Paul is driving me to School today to talk to Dr. Wilson about the 2014 school year. I do not trust myself driving under all the medications. Paisley is keeping me company and is the best greeter in the morning. McChemey is pumping my chemo drugs as I type. I return him Thursday at 2:00.
Thanks again to all my friends and family for your support and many gifts. I gained 3 lbs from my last treatments, which is really hard to do under chemo. It is a direct reflection of the many wonderful meals from my dear friends. The care calendar has been a true blessing.
Love, Cindy
PS: Please keep the prayers coming. We have already received so many blessings.
Tuesday, July 8, 2014
One more to go
Girls night last night was so much fun. Too much food but never enough girl time. That night I started running a low fever again. About 99-100. I had been having pain again for several days anyw here from a 5-7.
We called our GI that night to be sure I didn't need to go in..He said as long as I wasn't showing any jaundice symptoms and fever stayed below 100 I could wait till morning when I would see Dr. H and we could check my labs. I took some extra pain meds that night and slept fine. PHEW! I DID NOT WANT TO GO BACK TO THE HOSPITAL!!!
Labs were all good, including my liver #s. WBC was high, but it has been since this started. She didn't hesitate to write a prescription for augmentin and also gave me a bag of IV antibiotics today. Our thoughts were that sometimes infections do not go away with one round of antibiotics so lets try round 2. Pain has subsided for now, Dr. S, the GI,thinks it could be my body rejecting the new stint, but he will talk with my surgeon about that and get back to us. The gallbladder still needs to come out, as of now the plan is to keep moving along and take care of both during my Whipple surgery.
A huge shout out to my chemo buddies today, Caroline, Pam,Paul and Stacy. I think you guys spent more time visiting and watching me nap. I was hoping for a card game or maybe a movie, but the eyelids were not having it. haha
Tomorrow my BFF, Janie, who I have known since the 4th grade, is driving in from Dallas to stay a couple days while Paul works and gets caught up. Dallas isn't far, but we don't see each other nearly enough.
We called our GI that night to be sure I didn't need to go in..He said as long as I wasn't showing any jaundice symptoms and fever stayed below 100 I could wait till morning when I would see Dr. H and we could check my labs. I took some extra pain meds that night and slept fine. PHEW! I DID NOT WANT TO GO BACK TO THE HOSPITAL!!!
Labs were all good, including my liver #s. WBC was high, but it has been since this started. She didn't hesitate to write a prescription for augmentin and also gave me a bag of IV antibiotics today. Our thoughts were that sometimes infections do not go away with one round of antibiotics so lets try round 2. Pain has subsided for now, Dr. S, the GI,thinks it could be my body rejecting the new stint, but he will talk with my surgeon about that and get back to us. The gallbladder still needs to come out, as of now the plan is to keep moving along and take care of both during my Whipple surgery.
A huge shout out to my chemo buddies today, Caroline, Pam,Paul and Stacy. I think you guys spent more time visiting and watching me nap. I was hoping for a card game or maybe a movie, but the eyelids were not having it. haha
Tomorrow my BFF, Janie, who I have known since the 4th grade, is driving in from Dallas to stay a couple days while Paul works and gets caught up. Dallas isn't far, but we don't see each other nearly enough.
Saturday, July 5, 2014
Happy Fourth of July!
Enjoyed the day with our friends the Blocks and family poolside. Thank you Paul and Kathy Ford for inviting us and the Deaks again this year to your lovely home in the hill country where we had an amazing view of several firework shows around the area ,good food and the mini pies were a hit. :)
My labs on Tuesday were normal. Nothing to report there. Still feeling good and eating normal. The best part of this week, enjoying my morning cup of coffee again. So simple, I know, but it is the little things that sometimes mean the most. LOL
Monday night, is girls night here at my house. Can't wait to catch up with my girls and their summer vaca pics and stories. My besty, Caroline, is spending the night and taking me to Chemo on Tuesday morning.
My plan, unless Dr. H, decides to change it, is to stick with the same medication schedule from last time since it worked like a charm. :)
XXOO,
Cindy
My labs on Tuesday were normal. Nothing to report there. Still feeling good and eating normal. The best part of this week, enjoying my morning cup of coffee again. So simple, I know, but it is the little things that sometimes mean the most. LOL
Monday night, is girls night here at my house. Can't wait to catch up with my girls and their summer vaca pics and stories. My besty, Caroline, is spending the night and taking me to Chemo on Tuesday morning.
My plan, unless Dr. H, decides to change it, is to stick with the same medication schedule from last time since it worked like a charm. :)
XXOO,
Cindy
Monday, June 30, 2014
Feeling blessed
This past week has been so wonderful it doesn't seem real. Paul and I have been joking about whether I got the real chemo or just a placebo. Yesterday was the perfect day. Paul's two uncles, Chris and Mike, and their lovely wives flew in from Florida for the weekend. This weekend would have been our family reunion at St. Augustine Beach, Fl. Since we were unable to go this year, they brought sand, shells, photos, home movies and lots of stories to reminisce about. We spent most of the day poolside floating.
I want to take this time again to say how very blessed I am to have so many wonderful people on my team.
I feel GODS Grace with every hug, flower, card, text, post, kiss, meal, visit, and all other acts of compassion I have received over the past few weeks. My sweet friend, Caroline, said, "get ready for the avalanche" and she was right. Thank you for keeping me in your prayers. Many have been and continue to be answered.
Nothing this week but some labs tomorrow. :)
Hugs all around,
Cindy
I want to take this time again to say how very blessed I am to have so many wonderful people on my team.
I feel GODS Grace with every hug, flower, card, text, post, kiss, meal, visit, and all other acts of compassion I have received over the past few weeks. My sweet friend, Caroline, said, "get ready for the avalanche" and she was right. Thank you for keeping me in your prayers. Many have been and continue to be answered.
Nothing this week but some labs tomorrow. :)
Hugs all around,
Cindy
Thursday, June 26, 2014
Feeling Good
Today was an unexpected surprise. Thought I'd feel a bit yucky by this afternoon, but instead I've had a very normal day.
Started off with a hungry tummy. Had to have a bowl of cheerios! Then continued to eat throughout the day with cravings for chicken tenders, pasta, fresh watermelon and anything else that just sounded good. No nausea yet.
Still no extra pain meds, just the patch which I switch out tonight. No clammy, sweaty symptoms all day today either. YAY ! That is so annoying. We think the decrease in pain meds has made a big difference.
Turned McChemy in about 1:00. We got a long better this time around too.
My sisters, Jeanne and Darla, left around 10:00 this morning. They were my guardian angels, personal shoppers, chemo buddies, chef, and all around amazing care givers. My meds are now all organized and ready each morning to check off. Most will taper down after this week.
There are no words to express the amount of appreciation and love I have for these two amazing women.
Their time here also enabled Paul to work and take care of himself by getting the rest he needed to continue this fight. After all,it's a marathon not a sprint.
Should be a tired icky day tomorrow, but who knows. Maybe another surprise.
THANK YOU AGAIN FOR SUPPORTING THE CARE CALENDAR! Be sure to check it again as some dates have changed.
hugs all around,
Cindy
Started off with a hungry tummy. Had to have a bowl of cheerios! Then continued to eat throughout the day with cravings for chicken tenders, pasta, fresh watermelon and anything else that just sounded good. No nausea yet.
Still no extra pain meds, just the patch which I switch out tonight. No clammy, sweaty symptoms all day today either. YAY ! That is so annoying. We think the decrease in pain meds has made a big difference.
Turned McChemy in about 1:00. We got a long better this time around too.
My sisters, Jeanne and Darla, left around 10:00 this morning. They were my guardian angels, personal shoppers, chemo buddies, chef, and all around amazing care givers. My meds are now all organized and ready each morning to check off. Most will taper down after this week.
There are no words to express the amount of appreciation and love I have for these two amazing women.
Their time here also enabled Paul to work and take care of himself by getting the rest he needed to continue this fight. After all,it's a marathon not a sprint.
Should be a tired icky day tomorrow, but who knows. Maybe another surprise.
THANK YOU AGAIN FOR SUPPORTING THE CARE CALENDAR! Be sure to check it again as some dates have changed.
hugs all around,
Cindy
Tuesday, June 24, 2014
Happy Birthday To Me
Successful appointment with Dr. H as she listened and adjusted meds. As of now the new dose patch is doing the trick. No extra boost needed. She said pain meds should reduce daily. Prayers for no more BIG surprises.
Paul and sisters stayed with me a couple hours as the chemo routine began. Got a few princess ribbons to decorate the area, Stacy came with two huge balloons, Alex and flowers and a big thank you to Jen for my lunch/sub.Really hit the spot.
The day went fast. McChemy ( my chemo pump) is back and ready to fight another couple of days.
Looking forward to seeing more family this weekend flying in from Florida. Our reunion was cancelled when all this started. One day they called and asked if they could bring their part of reunion to me. Will enjoy watching family videos of past beach reunions. :)
Ordering Thai with one of our Eat In, Eat Out, gift cards. Thank you Mimi and Goody.
Prayers are being answered daily. Thank you all again more than I can say.
Hugs all around,
Cindy
Paul and sisters stayed with me a couple hours as the chemo routine began. Got a few princess ribbons to decorate the area, Stacy came with two huge balloons, Alex and flowers and a big thank you to Jen for my lunch/sub.Really hit the spot.
The day went fast. McChemy ( my chemo pump) is back and ready to fight another couple of days.
Looking forward to seeing more family this weekend flying in from Florida. Our reunion was cancelled when all this started. One day they called and asked if they could bring their part of reunion to me. Will enjoy watching family videos of past beach reunions. :)
Ordering Thai with one of our Eat In, Eat Out, gift cards. Thank you Mimi and Goody.
Prayers are being answered daily. Thank you all again more than I can say.
Hugs all around,
Cindy
Sunday, June 22, 2014
Great Weekend
I was so glad to get home from the hospital on Friday. Relaxed and enjoyed being with Paul, my kids and of course, pups watching movies.
On Saturday, Darla and Jeanne Marie arrived. We had some time pool side to catch up on family news.
Since Tuesday, my birthday, is chemo day, we decided to choose Sunday to celebrate, Such a lovely day with some of my favorite girls. We started with mani and pedi time where we all ended up with the same color...cajun shrimp. I call it poppy. :) Then to Tony C's our new favorite pizza place. Back at the house we had presents and lots of treats. Thank you Jill for bringing your wonderful salad for dinner. It was just what we needed after a big lunch. :) We watched the World Cup. Too bad how that turned out. :(
Thank you Caroline , Lisa , Karen, Darla, and Jeanne Marie and Stacy for a fabulous birthday celebration.
LOVE you girls more than words can ever say.
The last two days were close to pain free!! Ready for fight again. Tuesday, we meet with my oncologist at 8:00 to go over labs and meds. Then start chemo as planned.
Hugs all around,
Cindy
On Saturday, Darla and Jeanne Marie arrived. We had some time pool side to catch up on family news.
Since Tuesday, my birthday, is chemo day, we decided to choose Sunday to celebrate, Such a lovely day with some of my favorite girls. We started with mani and pedi time where we all ended up with the same color...cajun shrimp. I call it poppy. :) Then to Tony C's our new favorite pizza place. Back at the house we had presents and lots of treats. Thank you Jill for bringing your wonderful salad for dinner. It was just what we needed after a big lunch. :) We watched the World Cup. Too bad how that turned out. :(
Thank you Caroline , Lisa , Karen, Darla, and Jeanne Marie and Stacy for a fabulous birthday celebration.
LOVE you girls more than words can ever say.
The last two days were close to pain free!! Ready for fight again. Tuesday, we meet with my oncologist at 8:00 to go over labs and meds. Then start chemo as planned.
Hugs all around,
Cindy
Friday, June 20, 2014
Home
I was discharged today around noon. Pain meds have been adjusted to a time release patch which lasts 72 hours. I have a prescription for these so we can replace them ourselves. It is already such a relief not to check the clock and worry about to much or not enough. So far the patch seems to be enough along with morphine tab 2X a day but have backup in case of a swing.
Looking forward to seeing my two sister -laws who are coming tomorrow from Houston and Jacksonville,Fl.. Need me some "sista" time. :)
Thank you to the families who brought meals and treats this week. I know Alex especially appreciated it since he was home alone a lot. Home made sugar cookies and a delivery from up state New York of Shari's Berries were definite highlights.
Hugs and Kisses
Cindy
Horrible Recovery Day
Unfortunately we learned a lot about hospitals yesterday. It is important to ask how many patients your nurse is covering and stand up for what you need.
Cindy's pain care was mismanaged all day, she stayed in terrible pain between a level 8-10. I am angry at myself for not being stronger and demanding better care. Never again!
We worked at it all day but did not get her meds changed until the evening, I was so exhausted and tagged out with our dear friend Lisa, who stayed with her until she could get some much needed sleep. Thank you Lisa!
Today is a new day, and we are hoping to leave the hospital as soon as possible. Could be as soon as today.
We have a new plan for pain management.
We are still on track for chemo on Tuesday at Texas Oncology in Round Rock.
My sister Darla and sister in law Jeanne Marie will come today to help during the coming week.
Thank you everyone for helping us work through Cindy's cancer fight!
You have all been so supportive, thank you, thank you, thank you!
-Paul
Cindy's pain care was mismanaged all day, she stayed in terrible pain between a level 8-10. I am angry at myself for not being stronger and demanding better care. Never again!
We worked at it all day but did not get her meds changed until the evening, I was so exhausted and tagged out with our dear friend Lisa, who stayed with her until she could get some much needed sleep. Thank you Lisa!
Today is a new day, and we are hoping to leave the hospital as soon as possible. Could be as soon as today.
We have a new plan for pain management.
We are still on track for chemo on Tuesday at Texas Oncology in Round Rock.
My sister Darla and sister in law Jeanne Marie will come today to help during the coming week.
Thank you everyone for helping us work through Cindy's cancer fight!
You have all been so supportive, thank you, thank you, thank you!
-Paul
Thursday, June 19, 2014
Procedure Success!
Dr. Srygley successfully replaced stints in both the pancreas and gallbladder. The procedure went well but infection is still an issue. Cindy will spend the night again at St. David's in Rm. 249. They want to keep her on antibiotics, manage her pain, and test for pancreatitis.
Dr. Hellerstadt just called and we will remain on track for chemo next Tuesday, pending a positive recovery today. Cindy is resting comfortably in recovery will return to her room at 10:15a
Thank you for lifting her up with your prayers!
Dr. Hellerstadt just called and we will remain on track for chemo next Tuesday, pending a positive recovery today. Cindy is resting comfortably in recovery will return to her room at 10:15a
Thank you for lifting her up with your prayers!
EMRCT Day
I slept good last night. The morphine gave me a rash so we had to switch pain regime at 2 am. The Benadryl for the rash sure made me sleepy! My nursing staff has been wonderful as always. They said I was their favorite patient. Awww so sweet! I just met Peggy, my navigator. She will be in the procedure with me holding my hand. Love her! My fever has broke and antibiotics are working! Pain level is down to a 4 and manageable. My procedure to replace stint is a go!
Getting prepped now and waiting for transport to surgical room. Another beautiful day at St. David's!
Romeo and Juliet playing at the Round Rock amphitheater tonight. Wishing I could go with my pauli!
Getting prepped now and waiting for transport to surgical room. Another beautiful day at St. David's!
Romeo and Juliet playing at the Round Rock amphitheater tonight. Wishing I could go with my pauli!
Wednesday, June 18, 2014
Pain Update
Cindy is being admitted to St. David's South this morning after meeting with Dr. Srygley. She is running a fever. Procedure for stint replacement will be moved to Thursday to allow for more testing and antibiotics to break the fever. Cindy's pain will be managed and she is most comfortable at the hospital. The goal is to replace the stint with a coated stint that will last until removed during the whipple surgery at the end of chemo and radiation treatment. We will know more later today what is causing the pain once lab results are back. She is feeling good today and visitors are welcome later today once she is checked in.
Phew! We made it
We made it through the night! We set alarms for every two hours so Cindy could take her pain meds. They worked very well and we were able to get some much needed rest.
On our way now to meet with Dr. Srygley and hopefully have procedure this afternoon that will replace the stint. We hope this will help to reduce the pain, the antibiotics have also been helping.
Thank you all for your continued support and lifting us up during these very challenging times. It is a much brighter day today!
Love,
Paul and Cindy
On our way now to meet with Dr. Srygley and hopefully have procedure this afternoon that will replace the stint. We hope this will help to reduce the pain, the antibiotics have also been helping.
Thank you all for your continued support and lifting us up during these very challenging times. It is a much brighter day today!
Love,
Paul and Cindy
Tuesday, June 17, 2014
Going South
Cindy had a break through after fighting it for 6 hours at a level 10 or higher. The pharmacist increased her frequency of taking pain meds to 2 hours from 4 hours and what a difference. Cindy is at a 6 now which allows her to walk and talk and even took a shower. We are praying this pattern holds and we can maintain a 6.
We meet Dr. Srygley tomorrow morning at 9:30 at St. David's South and will have a procedure with his team in the afternoon. We will be at the St David's South hospital for a a couple days. The plan is to replace a stint and put eyes on the situation.
Thanks, Paul and Cindy
We meet Dr. Srygley tomorrow morning at 9:30 at St. David's South and will have a procedure with his team in the afternoon. We will be at the St David's South hospital for a a couple days. The plan is to replace a stint and put eyes on the situation.
Thanks, Paul and Cindy
PAIN
I wish we had better news to write about. Cindy started getting horrible sharp pains yesterday at two in the afternoon. Our doctors called in oxycodone but it had no effect. Cindy road the pain out as long as she could. We checked into the ER around 4:00 am. They were able to get he pain down to a 4 with dilaudid.
They did more blood test and a CAT scan. It appears she may have an infection causing the pain but our doctors are still working on it.
We were released and Dr. Hellerstedt prescribed morphine and dilaudid pills. They have had little effect and Cindy is still in horrible pain over a 10. They also prescribed antibiotics for the infection. I am monitoring her breathing and she finally fell asleep from exhaustion. Hopefully she will feel better when she awakes or we plan to check back into the hospital so they can better manage her pain.
I pray my next post will be much better news.
Thank you for all your support on the care calendar and prayers, Paul
They did more blood test and a CAT scan. It appears she may have an infection causing the pain but our doctors are still working on it.
We were released and Dr. Hellerstedt prescribed morphine and dilaudid pills. They have had little effect and Cindy is still in horrible pain over a 10. They also prescribed antibiotics for the infection. I am monitoring her breathing and she finally fell asleep from exhaustion. Hopefully she will feel better when she awakes or we plan to check back into the hospital so they can better manage her pain.
I pray my next post will be much better news.
Thank you for all your support on the care calendar and prayers, Paul
Thursday, June 12, 2014
FREEDOM from McChemey
Restless night about 2:00 as a little nausea started. Took some meds and was able to control it. Ate breakfast and didn't have any more trouble the rest of the day. Just a little fatigue so lots of cat naps. Tonight I have a better plan and feel confident I will sleep better.
Today we meet with our Radiologist, Dr. Cohen, who is part of my team. The team met about me prior to our meeting to discuss a game plan. It was decided the best coarse of action is to continue to follow the MD Anderson protocol including Radiation in conjunction with Chemotherapy. This won't start till mid July. The Chemo helps to intensify the radiations results just like adding salt to water to increase the boiling rate. The radiation will be targeted from 9 different points to minimize damage to other organs but deliver a very concentrated dose to the mass. Its the same as a stage highlighting the performer. One huge spot light will blind the performer but 9 points of light from different angles provides the full effect.
I will receive one CT scan in 4D prior to beginning of each week of the 28 days of radiation. That enables the 9 beams of radiation to focus exactly where they need to be and takes into account my breathing that actually moves your organs slightly. During this scan I am wrapped in a bean bag type pillow that molds to your body so that I am in the exact same position for every CT scan. AMAZING TECHNOLOGY!
I also had an appointment at the oncologist to remove my Chemo pump (McChemey). Each time I'd hear the pump I'd picture another troop of little super heroes with purple capes going into attack And then I'd say "thank you", Why purple? It happens to be the color for pancreatic cancer and also my favorite color. Not sure how I feel about that, but I plan to make it positive.
Thank you Sue and Clark and Chiriboga family for the yummy meals the past two days. Loved catching up too.
Off now for a nice long pump free shower. AHHHHHH.
Hugs all around,
Cindy
Today we meet with our Radiologist, Dr. Cohen, who is part of my team. The team met about me prior to our meeting to discuss a game plan. It was decided the best coarse of action is to continue to follow the MD Anderson protocol including Radiation in conjunction with Chemotherapy. This won't start till mid July. The Chemo helps to intensify the radiations results just like adding salt to water to increase the boiling rate. The radiation will be targeted from 9 different points to minimize damage to other organs but deliver a very concentrated dose to the mass. Its the same as a stage highlighting the performer. One huge spot light will blind the performer but 9 points of light from different angles provides the full effect.
I will receive one CT scan in 4D prior to beginning of each week of the 28 days of radiation. That enables the 9 beams of radiation to focus exactly where they need to be and takes into account my breathing that actually moves your organs slightly. During this scan I am wrapped in a bean bag type pillow that molds to your body so that I am in the exact same position for every CT scan. AMAZING TECHNOLOGY!
I also had an appointment at the oncologist to remove my Chemo pump (McChemey). Each time I'd hear the pump I'd picture another troop of little super heroes with purple capes going into attack And then I'd say "thank you", Why purple? It happens to be the color for pancreatic cancer and also my favorite color. Not sure how I feel about that, but I plan to make it positive.
Thank you Sue and Clark and Chiriboga family for the yummy meals the past two days. Loved catching up too.
Off now for a nice long pump free shower. AHHHHHH.
Hugs all around,
Cindy
Tuesday, June 10, 2014
Chemo Day part 2
Home around 5:00. Thank you Lisa for the lift home The pump is bigger and heavier than I thought, but at least its only hanging out for two days. It's looks like a bigger size Walkman, about 6in. long, It's pumps more chemo into my port. It's water resistant so it will have to hang outside the shower on a coat hanger. That will be interesting.
As for sleeping, it can go beside you on the night stand and continue pumping away. It's quiet most of the time. Only buzzes a little when it pumps now and then. The nurse said the pack itself is mine to keep so bling it up if we want. Any bedazzle talant out there? LOL She also said some pumps get names. Of course I gave that task to Lisa and she didn't let me down. " McChemi", instead of Mc Dreamy...You Grey's Anatomy fans will understand. hahaha
Nurse Kelly said I probably won't feel nauseated for a few days because of the meds given today. But as soon as I do, and I may not, I have meds to control it. She also said, like a few others, that I will most likely not loose my hair but it will thin. I'm thinking a shorter doo may be in my future.
Thursday, the 12th, I will go get the pump removed and also meet our Radiologist, Dr. Cohen. Next treatment scheduled for Tues., June 24. Yep, my birthday. If somethings opens up on Monday, I'll take it instead.
I'll get the July Care Calendar going this week.
Hugs,
Cindy
Going in for the Kill
We had a wonderful evening with my team last night at Perlas. Chef Michael took very good care of us and the food was amazing. We ate just about everything fabulous that comes from the sea. What a nice treat to keep my mind off of today.
Lab results came in and all my numbers are fantastic (Normal). That means I get to fight the battle today with a full dose of chemo. We arrived at 7:45 this morning to meet with Dr. Hellerstadt and discuss my Pet scan and lab work in great detail.
We are now in the infusion wing fighting the fight in my Longhorn attire. My nurse, Kelley is wonderful and
very cheerful. My medical team has been fantastic. We have met a few characters on my wing and we are looking forward to following their progress. Its like a day at the spa except the wine is given intravenously and its call larazopan. hahaha I just had a wonderful foot massage,homemade snicker-doodle cookies delivered by a volunteer, lunch from Panera and am ready for a big nap. Anti nausea meds make you sleepy.
What a great nap!!! Stacy and Paul helped me this morning, Alex is on his way from class and Lisa will bring me home around five. A friend from my wonderful support group is bringing us a yummy Chicken Pecatta dinner tonight.
Thank you so much to my family,friends and love ones. It is with your support and my faith that we will all
beat this thing by 2015!!
By the way, Pancreatic Cancer has a color too and it's PURPLE! Which happens to be my favorite color for years. Last night Paul insisted I go into the Kendra Scott store next to the restaurant to choose a pair of earrings in purple. I resisted for a while, but he wore me down, :) Also, thanks to my sweet niece Lindsay Cathcart, I will have a "stay calm and sing soft kitty" shirt in PURPLE! :) My next treatment day, probably June 24, my birthday, we will all wear our purple. Come guys, you know you can do it. Be secure.
Love, Cindy
Lab results came in and all my numbers are fantastic (Normal). That means I get to fight the battle today with a full dose of chemo. We arrived at 7:45 this morning to meet with Dr. Hellerstadt and discuss my Pet scan and lab work in great detail.
We are now in the infusion wing fighting the fight in my Longhorn attire. My nurse, Kelley is wonderful and
very cheerful. My medical team has been fantastic. We have met a few characters on my wing and we are looking forward to following their progress. Its like a day at the spa except the wine is given intravenously and its call larazopan. hahaha I just had a wonderful foot massage,homemade snicker-doodle cookies delivered by a volunteer, lunch from Panera and am ready for a big nap. Anti nausea meds make you sleepy.
What a great nap!!! Stacy and Paul helped me this morning, Alex is on his way from class and Lisa will bring me home around five. A friend from my wonderful support group is bringing us a yummy Chicken Pecatta dinner tonight.
Thank you so much to my family,friends and love ones. It is with your support and my faith that we will all
beat this thing by 2015!!
By the way, Pancreatic Cancer has a color too and it's PURPLE! Which happens to be my favorite color for years. Last night Paul insisted I go into the Kendra Scott store next to the restaurant to choose a pair of earrings in purple. I resisted for a while, but he wore me down, :) Also, thanks to my sweet niece Lindsay Cathcart, I will have a "stay calm and sing soft kitty" shirt in PURPLE! :) My next treatment day, probably June 24, my birthday, we will all wear our purple. Come guys, you know you can do it. Be secure.
Love, Cindy
Monday, June 9, 2014
PET scan results
Got an early phone call from our nurse. The PET scan I had on Friday showed the mass is still localized. :) Prayers answered, and tears of relief.
Have had a nice weekend. Got to go to dinner with friends, and even a little dancing on Saturday night.
Moving forward tomorrow morning starting at 7:45. Got my bag packed with comfy things, entertainment and snacks.
Thank you all again for your continued prayers and support.
Hugs,
Cindy
Have had a nice weekend. Got to go to dinner with friends, and even a little dancing on Saturday night.
Moving forward tomorrow morning starting at 7:45. Got my bag packed with comfy things, entertainment and snacks.
Thank you all again for your continued prayers and support.
Hugs,
Cindy
Friday, June 6, 2014
Friday- PET Scan Day
Went to Texas Oncology on Mopac for the PET scan my oncologist ordered to have as a baseline before starting treatment Tuesday. Have to say, I was a bit uncomfortable as the tech lead me to a trailer /travel clinic out back where we stepped into a platform that took us up a level to enter. Paul could not go with me on account of the lack of space inside. It didn't take long before I felt comfortable and things got under way. First an injection of a radioactive fluid that has to do it's thing for about 45 minutes. Apparently it makes your insides glow. Then the scanner slides you in and out for about 25 minutes. Total time was a couple of hours. Future PET scans will he at the Round Rock location where I have everything else. :) I was starving at this point since I couldn't have anything to eat all day. Paul suggested Chuy's and I thought, sure,why not. Nobody said my favorite Tex Mex was off limits. It was yummy.
I'd like to give a huge shout out to my Fern Bluff family, especially my team and to my son, Alex for getting my classroom moved to my new location on Wednesday. Thanks guys, you ROCK! No worries, still going to teach First grade, just from a different classroom.
Thanks to those who already signed up on the care calendar. Looking forward to not just the yummy meals, but visiting with some of my favorite peeps.
No appointments for 3 days!:) TGIF!
Hugs,
Cindy
Went to Texas Oncology on Mopac for the PET scan my oncologist ordered to have as a baseline before starting treatment Tuesday. Have to say, I was a bit uncomfortable as the tech lead me to a trailer /travel clinic out back where we stepped into a platform that took us up a level to enter. Paul could not go with me on account of the lack of space inside. It didn't take long before I felt comfortable and things got under way. First an injection of a radioactive fluid that has to do it's thing for about 45 minutes. Apparently it makes your insides glow. Then the scanner slides you in and out for about 25 minutes. Total time was a couple of hours. Future PET scans will he at the Round Rock location where I have everything else. :) I was starving at this point since I couldn't have anything to eat all day. Paul suggested Chuy's and I thought, sure,why not. Nobody said my favorite Tex Mex was off limits. It was yummy.
I'd like to give a huge shout out to my Fern Bluff family, especially my team and to my son, Alex for getting my classroom moved to my new location on Wednesday. Thanks guys, you ROCK! No worries, still going to teach First grade, just from a different classroom.
Thanks to those who already signed up on the care calendar. Looking forward to not just the yummy meals, but visiting with some of my favorite peeps.
No appointments for 3 days!:) TGIF!
Hugs,
Cindy
Thursday, June 5, 2014
Great chemo training today
We had a very thorough chemo training today, and a tour of the facility. There are four drugs which will be administered throughout each day into Cindy's port. Each have their own side effects that will all be managed.
Nausea medication precedes the chemo treatment, and they encouraged us to bring food, ideally soups and sandwiches. The room can be chilly so layers are a good idea! The room also has a TV and Wifi, as well as microwaves and refrigerators.
The chemo is expected to hit hard after a couple of days and side effects will diminish as the week continues. In addition to the anti-nausea, pain killers will also be necessary to relieve aches and pains.
The chemo pump will stay in for 48 hours after treatment, then labs will be taken, and injections given to increase T-cell production.
We have two nurses and a pharmacy available 24/7 to help manage side effects.
We go in Tuesday morning to start the war.
-Paul
Nausea medication precedes the chemo treatment, and they encouraged us to bring food, ideally soups and sandwiches. The room can be chilly so layers are a good idea! The room also has a TV and Wifi, as well as microwaves and refrigerators.
The chemo is expected to hit hard after a couple of days and side effects will diminish as the week continues. In addition to the anti-nausea, pain killers will also be necessary to relieve aches and pains.
The chemo pump will stay in for 48 hours after treatment, then labs will be taken, and injections given to increase T-cell production.
We have two nurses and a pharmacy available 24/7 to help manage side effects.
We go in Tuesday morning to start the war.
-Paul
Meal Care Calendar Sign-Up
Below is a care calendar to sign-up to bring meals for my mom for the month of June. More months will be added soon. It contains home address and meal preferences. Thank you Debbie Alayan for setting that up!
Www.carecalendar.org
Login Codes:
183546C
4772
Chemo buddy times will not be on the calendar for now because we will not have exact dates of chemo. It is based on white blood counts that will be tested shortly before each treatment that will determine the day. You can email, call or text me if you are interested. Cindy will also love to have visitors and help throughout the days in between treatment. You can contact her directly for visits! Things like laundry, vacuuming, playing with Paisley would all be helpful. :)
Chemo Treatment Cycle
Day 1-Chemo treatment lasts for 6-8 hours at Texas Oncology Round Rock
Day 2- Hard bed bound, Flu like
Day 3- Couch bound
Day 4- Tired, weak but able to move around
Day 5- Tired but ready to leave the house
Day 6-14 Gaining strength daily
Everyone reacts differently but this is generally what to expect.
Stacy Scarborough, Cindy's Daughter
Stacy@wilcoangels.com
Cell:512-922-8979
Thank you all!!!
Www.carecalendar.org
Login Codes:
183546C
4772
Chemo buddy times will not be on the calendar for now because we will not have exact dates of chemo. It is based on white blood counts that will be tested shortly before each treatment that will determine the day. You can email, call or text me if you are interested. Cindy will also love to have visitors and help throughout the days in between treatment. You can contact her directly for visits! Things like laundry, vacuuming, playing with Paisley would all be helpful. :)
Chemo Treatment Cycle
Day 1-Chemo treatment lasts for 6-8 hours at Texas Oncology Round Rock
Day 2- Hard bed bound, Flu like
Day 3- Couch bound
Day 4- Tired, weak but able to move around
Day 5- Tired but ready to leave the house
Day 6-14 Gaining strength daily
Everyone reacts differently but this is generally what to expect.
Stacy Scarborough, Cindy's Daughter
Stacy@wilcoangels.com
Cell:512-922-8979
Thank you all!!!
Wednesday, June 4, 2014
Princess Port
Cindy's port was installed this morning and is resting comfortably in recovery! Her appetite is back and she is all smiles. Next stop, Kerby Lane Cafe! She will be able to go home in the next couple of hours.
Thank you all for your continued support!
Thank you all for your continued support!
Tuesday, June 3, 2014
Tuesday Oncology Appointment
Wow, great meeting with Dr. Beth Hellerstedt. We have our plan of action and are moving forward. Cindy has her pain pills and nausea medication (Dexamethasone, Promethazine, Ondansetron, Norco). We have been assigned a Nutritionist.
Plan: 8 weeks chemo( 1 time a week every 2 weeks) including a 48 hour chemo pump. The pump is removed after two days.Then 6 weeks chemo and radiation (Daily M-F), rest two weeks, Surgery in 16 weeks to remove tumor. Cindy back to normal by Christmas cancer free!!!! Here that Santa?
6/3 Met with Oncologist, Pharmacologist team, lab work and schedulers.
6/4 Port installed with Dr. McKenzie St Davids South 6:00 am
6/5 Chemo Teach class at 10:30a at Texas Oncology 2410 Round Rock Ave (Joanna, Nurse Practitioner)
6/6 Pet scan at Texas oncology (Balcones location)
6/10 Chemo Starts at Texas Oncology Folfirinox, 5fluorouracil, Lrindecan, Oxalipatin
4 cycles total, once every two weeks for 8 week, then Chemo (5fluaravacil) and radiation daily m-f 6 weeks
6/12 Dr. Cohen Radiation Consult
6/12 Pump removal
* Dates are subject to change
More information to come on how people can help, we are working on a care calendar online to coordinate it. Contact Stacy 512-922-8979. Paul, Stacy, and Alex will be her first Chemo buddies during treatment on Tuesday. She looks forward to many hours of entertainment and care to follow from the rest of TEAM CINDY.:)
Monday, June 2, 2014
Big day today
Went to school to pack up for summer. A lot more to do this year since I am moving classrooms, but I have tons of help. It was so great to see my Fern Bluff family again! Love those peeps <3
Meeting my oncologist, Beth Hellerstent at 7:30 Tuesday morning, and am looking forward to getting more answers and a treatment schedule. I've heard nothing but wonderful things about her and her team.
Then on Wednesday I have an outpatient procedure to get a port. It will be on my left side below the collar bone. I'll be sore for about a week and cannot lift things but after that, no restrictions. I can even get in the pool!
Love,
Cindy
Meeting my oncologist, Beth Hellerstent at 7:30 Tuesday morning, and am looking forward to getting more answers and a treatment schedule. I've heard nothing but wonderful things about her and her team.
Then on Wednesday I have an outpatient procedure to get a port. It will be on my left side below the collar bone. I'll be sore for about a week and cannot lift things but after that, no restrictions. I can even get in the pool!
Love,
Cindy
Friday, May 30, 2014
Meeting with Dr. McKenzie
Great meeting with Dr. Mckenzie
My tumor is about the size of a grape and their is every indication that it has not spread. The stage is not clear at this point in time due to the location on the Pancreas. It was rated as a stage one or possible stage two because it may have attached to the vein.
My team will be following the MD Anderson protocol. They will first attack the tumor with chemotherapy to shrink and keep the tumor from spreading. That will be accompanied by radiation. We anticipate this treatment to last for 3 months. If there is no sign of growth we will proceed with the Whipple surgery to remove the tumor.
I go into St. David's Central on Tuesday morning to have a port installed surgically by Dr. McKenzie for chemotherapy. I then meet with Dr. Hellerstadt of Texas Oncology that afternoon to discuss chemo treatment and radiation. My Advocate, Peggy Smith will join Us.
I am feeling very confident in my medical team and blessed to be supported by so many caring people.
Thank God for the power of prayer!
Love, Cindy
My tumor is about the size of a grape and their is every indication that it has not spread. The stage is not clear at this point in time due to the location on the Pancreas. It was rated as a stage one or possible stage two because it may have attached to the vein.
My team will be following the MD Anderson protocol. They will first attack the tumor with chemotherapy to shrink and keep the tumor from spreading. That will be accompanied by radiation. We anticipate this treatment to last for 3 months. If there is no sign of growth we will proceed with the Whipple surgery to remove the tumor.
I go into St. David's Central on Tuesday morning to have a port installed surgically by Dr. McKenzie for chemotherapy. I then meet with Dr. Hellerstadt of Texas Oncology that afternoon to discuss chemo treatment and radiation. My Advocate, Peggy Smith will join Us.
I am feeling very confident in my medical team and blessed to be supported by so many caring people.
Thank God for the power of prayer!
Love, Cindy
Thursday, May 29, 2014
The fight is on!
We have sent all tests, scans, labs, blood work, radiology, and pathology down to M.D. Anderson.
We want a second opinion, and another set of eyes on Cindy's case. Now we're waiting for an appointment hopefully next week, and still meeting with the Austin team on Friday (tomorrow)
Thank you for the continued prayers and support!
-Paul
We want a second opinion, and another set of eyes on Cindy's case. Now we're waiting for an appointment hopefully next week, and still meeting with the Austin team on Friday (tomorrow)
Thank you for the continued prayers and support!
-Paul
Wednesday, May 28, 2014
Update
Pathology in, and the mass has been found to be cancerous. We will be fighting back aggressively. At 9am on Friday morning we will meet with her new advocate, Peggy, her surgeon Dr. McKenzie, and the oncology team at St. David's Central to form a plan.
Please keep the prayers flowing! Today is our 31st wedding anniversary, and I pray for at least 30 more! -Paul
Please keep the prayers flowing! Today is our 31st wedding anniversary, and I pray for at least 30 more! -Paul
Tuesday, May 27, 2014
Update
We made it to the hospital by 6:30 in a driving rain. Procedure started promptly at 8:30 am and everything went very smoothly. Dr Srygley took pictures and gathered the Biopsy. We should have results by Thursday afternoon. Mass
Looked suspicious but pathology will define treatment.
We are on our way home now to celebrate our 31st wedding anniversary 5/28/1983
Cindy needs to take it easy and regain her strength. Liver and pancreas still very angry and inflamed. Keep the prayers coming!
-Paul
Looked suspicious but pathology will define treatment.
We are on our way home now to celebrate our 31st wedding anniversary 5/28/1983
Cindy needs to take it easy and regain her strength. Liver and pancreas still very angry and inflamed. Keep the prayers coming!
-Paul
Monday, May 26, 2014
Update
Got the early bird special. Endoscope is at 8:30 a.m. on Tuesday. Hoping for results as early as Thursday morning.
Had a great weekend with family and friends including a pedi 👏. Watched a very sweet get well video from my class. Thank you Kim White .❤️ -Cindy
Had a great weekend with family and friends including a pedi 👏. Watched a very sweet get well video from my class. Thank you Kim White .❤️ -Cindy
Friday, May 23, 2014
From Cindy
First night home was great! Loved on the pups and tried to watch a movie but fell asleep early. Slept well too. Only woke up once for some meds. Woke up later with an appetite and attacked the cut up watermelon in the fridge. Able to decrease pain meds too. Now if I can just keep myself from doing too much. You know me, always finding something that needs organized or cleaned. Dove into the "boredom basket" my wonderful team gave me. Not sure if I want to read or just color. Hmmm, why not a little of both. Although I'm not out of the woods completely I feel as though the clearing is just up ahead. Prayers for next week!
Love you all,
Cindy
Love you all,
Cindy
Thursday, May 22, 2014
Update
She's home! Discharged at 4p and is resting comfortably with Paisley. She's very excited to be able to rest at home. Pain is manageable, though not much of an appetite.
She would love to have visitors over the weekend! Spirits are high but friends make it easier. Come and visit and talk about anything besides the past week! Haha
Thank you everyone for your continued love and support!
She would love to have visitors over the weekend! Spirits are high but friends make it easier. Come and visit and talk about anything besides the past week! Haha
Thank you everyone for your continued love and support!
Coming Home!
Cindy is coming home tonight after a week long stay in the hospital. She was admitted for gallstones and pancreatitis last Friday morning. The stones have been removed and stints placed so she is no longer jaundiced.
There was a mass found on her pancreas that will be biopsied next Tuesday, but this is good news because it was caught so early. They already have a plan of action should they need to go further.
Cindy's medical team has been fantastic, and St. David's has been excellent.
"Thanks to my nurses: Katie, Clara, Marcie, Amber, Will, and Matt. And to doctors: Robinson, Srygley, Benevich, McKenzie, and Sular. Thanks to my amazing support group who sent flowers, love, and prayed with me through this challenging time. My family, school team, and friends, thank you!" -Cindy
Please continue your prayers and support, as they are greatly appreciated!
There was a mass found on her pancreas that will be biopsied next Tuesday, but this is good news because it was caught so early. They already have a plan of action should they need to go further.
Cindy's medical team has been fantastic, and St. David's has been excellent.
"Thanks to my nurses: Katie, Clara, Marcie, Amber, Will, and Matt. And to doctors: Robinson, Srygley, Benevich, McKenzie, and Sular. Thanks to my amazing support group who sent flowers, love, and prayed with me through this challenging time. My family, school team, and friends, thank you!" -Cindy
Please continue your prayers and support, as they are greatly appreciated!
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